Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Wednesday, June 18, 2014

Studies Show That the Breakdown of Parenting into Quantifiable Units Demonstrates That it is Largely Chore-Based

I'm thinking about parenting, and little boys, and autism spectrum disorder, and I'm thinking, again, about the way social media is a place to telegraph triumphs in the name of positivity while all of the challenges often remain unacknowledged, neither tweeted nor prominent displayed in status updates.

However, in the interest of full disclosure, you must know there are days where my five-year-old boy has me on the brink of a nervous breakdown. I don't know whether you can chalk it up to age, gender, and/or diagnosis, but being in the house with him is maddening: he doesn't talk to me about his day, he doesn't draw at the table with paper and markers, he doesn't race his Hot Wheels down the long hallway; he pinballs off the walls and furniture while making repetitive, nonsense vocalizations, and this is interspersed with opening and closing the microwave twenty times, sliding open and closed the closet doors, opening and closing the freezer, and turning the sink water on and off over and over and over again. His energy is intense and odd, and his toys remain relatively unplayed with. Then, when we leave the house, he's always afflicted with the ants-in-his-pants jitters, and if I don't keep my eye firmly on him, he'll be gone. It happened twice at the aquarium today. I was looking at a fish, and he was already in another exhibit.

Beyond this, it seems important to also mention that parenting-- which, contrary to what you may have heard-- is not always "rewarding." Perhaps, yes, in the long run when our children are moulded, with our help, into high-functioning adults: I'll use the word "rewarding" then. In the meantime, in the interest of honesty, parenting often feels like a burdensome chain of chore-based activities. From the preparation of breakfast, which must be accompanied by teaching moments (How do you ask to leave the table? Use your napkin. Don't scratch the table with your fork. And so on.) all the way to reading that bedtime story, which I can't skip because of how important it is to his future as a reader. Frankly, my friends, I'm exhausted. Parenting (on a case-by-case basis, of course) can have you close to pulling out your hair or bursting into tears. Or drinking too much wine at the end of the day, which is better, I guess, than bringing a sippy cup of gin to the mall for a mommy playdate.

And yet, and yet, and yet. It's all so paradoxical, isn't it? It's not as though I've ever thought, "Send him back." Or "Why did I become a mother?" Or "Get me the hell out of here." In fact, anytime I've ever felt that my motherhood was threatened, ever worried about my son's well-being, I've become distraught. I've wept from the immensity of my love for my boy. He is my life now, for better or for worse, and I wouldn't trade him for more nights alone in the bathtub with a pile of soggy New Yorkers stacked on the floor next to me.

Which gets me to the other half of the better or worse equation. Of course we're going to telegraph those triumphant moments, the betters for the worsts. Because those moments feel like shining achievements of sanity. Those are the "aha!" moments that remind us why we ever gave up going to shows, taking quiet trips to the art museum, or enjoying loosey-goosey nights out with the girls. Take, for example, this morning: My son walks into the kitchen and says, "I was a baby in a different house, but this is the house where I'm going to grow up to be like daddy, just like a seed grows into a tree." And I was like, "Whoa, way to be profound before I've even had my coffee."

Wednesday, March 5, 2014

Unmasked

James Baldwin in Letters From a Region of the Mind makes the observation that “Love takes off the masks we fear we cannot live without and know we cannot live within,” which, on the surface, strikes one as sentiment bordering on the sentimental, as something pat and easily contained on a bumper sticker. Yet, as sentiment, the statement is emotionally accurate. James Baldwin knew the human heart.

Consider this: How much safer were you before love? And then: How much did you wish to cast off the hockey mask and enter the frays of romance, or of childbearing, or, even, of loving a pet that you knew would die before you? We walk around, before love, safe behind the armors of loneliness, and we ask those we deem worthy to strip it all away so that we stand there, a throbbing heart, exposed, the cages of our safety masks and curved ribs as good as gone.



Thus here I stand before you— world, fates, family— all of my masks gone, stripped down to the skin, and I ask, meekly, that you let me be in my nakedness or that you wrap me in the blankets of goodwill. Spare me the excoriation. My husband, late forties, the man I hand-picked and pursued, has just competed in a triathlon, and he is vital, a force, more alive than anyone I know. I see him pushing past all probabilities in terms of mortality, so when he rides his motorcycle home from the hospital at four in the morning after a long night of work, steer the drunk drivers the other way. 

And my son, my one and only child, the one who has already scared me, scarred me, with health concerns and mortal danger, let him outlive me, let him mourn and miss his long-dead mother. He is everyday getting farther away from that proverbial well that wishes to suck him down into darkness. Abnormal MRI, seizures, autism: He’s shrugging them off like a coat he has outgrown. In Mexico, when he fell into the deep-end of the pool, his father watched him plunge below the surface only to paddle up to where he was able to hoist himself over the side of the pool, away from tragedy and back into the waning sunlight. World, fates, family: Be safe and let me be safe.

And my two dogs? The smaller brown one has many years ahead of her. My old, white dog turned twelve last month, and I can see her eyes going milky. Her back legs slip out from underneath her, and I have to hoist her up. All ninety pounds of her. She has gotten more nervous with old age, and she can no longer hold her bowels very well. She doesn’t mean to shit on the floor, and I can feel her shame. She knows something is wrong. I clean it up with no admonishment. I just stroke her until I see her tail wag. In truth, I think she has another two years in her. When I picked her out from the homeless man’s litter twelve years ago, she could fit in a cat carrier. I was not projecting this far into the future; I did not think of her death. I just wanted to let a little love in.